Comments on: One woman’s crusade to help dementia sufferers

By: anne

anne — Tue, 14 Jul 2009 07:17:26 +0000

such a heart wrenching story, I am fortunate at the moment, that I haven’t had to deal with anything like that.

It is a lottery in this country, whatever your illness, totally wrong, if you are ill, you should get the help…!!

Also read somewhere yesterday about What is means tested and what isn’t and which country does what, ie Scotland and Wales, against England…if you have to go into a home, etc, Well guess what…..England is the worst.

Well done to Joanne, yes we need more people like her to SHOUT out…

By: Moggs

Moggs — Tue, 14 Jul 2009 06:22:44 +0000

This is a terrible thing that takes away vital sharp people bit by bit. They know it is happening. Anything that can slow it or roll it back needs pursuing.

The politicians and all of us should keep in mind that there, but for the grace of go go all of us. Without greater action certainly some of us will.

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Mon, 13 Jul 2009 07:31:05 +0000

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By: LADY MACLEOD

LADY MACLEOD — Sun, 12 Jul 2009 14:02:30 +0000

I watched my good friend for years as her mother deteriorated and she was forced to move her to more and more intensive care facilities. It was heartbreaking – and she had the finances to be sure of the best care. My heart breaks for those who have less or no resources.

Now, my mother-in-law, whom I have always liked so very much, is returned to me just as she is beginning to take that long slide into total living oblivion. At present she has ‘only’ short term memory loss – she knows who we are but not that she saw us five minutes ago. However a few weeks ago when J. and I went to visit we found her in great distress. She was very concerned that Maurice (her husband) had not returned from the movies. We had the heartrending task of reminding her that Maurice died in 2003.
As we took her into our arms it was a knife through the heart to feel her grief. felt new all over again.

I have volunteered to be the one to see her through the rest of her journey. I have the luxury of a more flexible schedule and time. For whatever reason I am equipped with the emotional tools to see this through better than those more closely related. I will be doing much research I am certain; and I wish all those who will be taking this journey – whether as a care giver or an onlooker or a support system – strength and the knowledge that, even though we don’t understand it, this too is part of the journey on the Path.
Thank you Joanne and Ellee. I think the more information that is out there the better, the more call for research – the greater the chance it will be heard. Every personal story is valuable and makes others facing this problem feel less alone.

By: Jean-Luc Picard

Jean-Luc Picard — Wed, 08 Jul 2009 19:41:30 +0000

It’s something a lot more people need to be aware of.

By: Welshcakes Limoncello

Welshcakes Limoncello — Wed, 08 Jul 2009 19:19:02 +0000

Well done, Joanne. People with this cruel illness need someone like you to fight for them. It is a cause close to my heart as my Mum was a sufferer.

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Winchester Whisperer — Wed, 08 Jul 2009 13:02:10 +0000

Pelmanism is a useful game to retrain the memory.

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By: jmb

jmb — Tue, 07 Jul 2009 23:22:54 +0000

As you know Ellee this is a topic dear to my heart. So good luck to Joanne as she tries to make this program more available to those who would benefit from it.

It was a wake up call to me when my friend whom I had hired caregivers for in his home, as he requested, went to hospital and I saw how he blossomed in a more social environment. So at that point I decided to put him into a home which had a special section for cognitively impaired people and very good programs for them.

Of course it was a temporary improvement as his Alzheimer’s progressed in the usual way. But he did have two good years from this.

By: James.R.Skinner

James.R.Skinner — Tue, 07 Jul 2009 18:55:08 +0000

I do agree that dementia needs alot more publicity and research in the UK.
The US have a good system of research into the disease and have made significant progress in some areas…much more than the UK anyway. I would suggest moe government intervention, but seeing as we are now bankrupt financially, perhaps this campaign is going to unfortunately struggle.